She either has “delayed visual maturation” or “cortical visual impairment”. I guess either way right now it doesn’t make much difference. The treatment is the same and the outcome could be the same.

Delayed visual maturation would mean that Ali’s eyes haven’t reached the level of development required to see well (this is common in children with Costello Syndrome). CVI would mean that her eyes are fine but that there is damage to her brain and the visual information isn’t processed properly. Either way she needs to practice using her eyes and hopefully we will see improvement.

The therapists at the CNIB were able to give us lots of ideas and suggestions of how to help Ali see better so hopefully there will be some improvement in the next few years.