We had to put in a new Mickey that was not only longer but narrower. The narrower Mickey means that it may be more difficult to feed the thickened formula, although to be honest I haven’t noticed a difference yet. The reason for the narrower Mickey is that over the weekend Ali’s g-tube stoma started to heal around the emergency feeding tube that we had inserted on Friday.  When we went to reinsert the original Mickey, it no longer fit. Ali was screaming because the process was so painful due to all the irritation that the short Mickey had caused so we went with a narrower one to eliminate some of the pain associated with reinserting it. There comes a point when you have to cut your losses and that was it.

The other problem is that the extreme irritation around her g-tube site caused a huge amount of granulation tissue to form around her stoma. Granulation tissue leads to poorly fitting Mickeys and has to be treated. The only way to treat it is to use silver nitrate to burn it off. So once a week we are going to have to go through that lovely process.

The past couple of weeks have been very difficult on Ali and on us but I am happy to say that I think she is feeling much better now. Today while Madi was at playschool, I took Ali for a walk downtown and she was a very happy girl. She had a couple of nice visits with some friends who stopped to say hello and she showed off her goofy grin! I love it when people admire my peanut!!!!!!!!!!!!! We then came home and she had a “bounce” in her jumperoo and had a fabulous time. Things are looking up!

Happy Remembrance Day to everyone. Let’s all take a minute on November 11 to remember the great sacrifice that so many men and women have made so that we can live life as we do in Canada. My grandfather fought in WWII and I’ll be thinking about him.