I spoke with Ali’s team of doctors this morning and again this afternoon. We’re going to be taking everything day by day in terms of a discharge date. The team is getting everything in place in terms of available services. There isn’t much available at home unfortunately. I met with the Outpatient feeding team today as well. We now have a plan in place to feed Ali once we go home. I also have all our supplies and her feeding pump. We also talked about which services will be provided to us on an outpatient basis. We will have appointments and telephone support from Occupational Therapy, Nutrition and Speech Pathology. We are also going to be followed closely by Pediatrics and Cardiology. It looks like we’ll be in Edmonton for appointments every second week at least and we’ll use telephone resources the rest of the time. The nutritionist is currently trying to find someone in Edson to come over and weigh Ali on a regular basis. If no one is available to do that then I’ll have to go to public health and weigh her myself.
I got another crack at putting in the feeding tube today. It was pretty easy the first time but this time I couldn’t get that pesky thing in despite a few attempts and now I’m angry at myself. It wasn’t exactly great for my confidence in this situation. Yes, I realize that I may have to do it alone in my living room next time and that this could present a problem so there’s no need for anyone to point that out (that would really not be helpful!). I got it in the first time and I just need to have confidence that I will get that darn thing in next time. I know what to do, I just couldn’t do it today but the training is over so now I have no choice. I have to do it next time and I’m rather stressed about it.