It’s nice to have something to celebrate, it’s been a rough week since we learned that Ali has poor vision. Ali also has a really bad cold again so she’s spitting up a lot and she’s very gaggy and congested right now.

I’ve been up a lot at night with our little bobean and it’s given me lots of time to think about how our lives have changed. This is not what I planned when we decided to have another child. Nobody wants this for their child, nobody wants this for their family and honestly nobody wants this for themselves. Taking care of Ali can be really tough. It means lots of appointments, lots of work and lots of worries but being her mother is amazing. Ali gives more then she takes. She is my baby and I love her regardless of any syndrome or any challenges. She can light up my day (or night) just by smiling at me. I’m thankful that she’s here and I’m thankful that she’s mine but yes I’d fix this for her if I could, I just can’t. I don’t consider myself a strong person, I’m just a mother who loves her children and is prepared to do whatever it takes to help them be the best they can be no matter what they have to face. Maybe I shouldn’t say this but I’m not a mom who wouldn’t change anything because I’d change this in a flash if I could but I would never give up Ali. If changing things meant not having Ali then I’d leave everything exactly how it is. So whether it’s teaching Madi to ride a bike (that child has no idea where her feet are!!) or helping Ali learn to function with poor vision then we’re going to get there and get it done, that’s just all there is to it.