Ali had an appointment with the pediatrician today and things went really well. He was pretty negative the first time we saw him and he left me feeling pretty devastated so this was a welcome change.

Although he still feels that she has the chromosomal abnormality that we were told about on our last trip to the city (I’m still not willing to say what syndrome it is ), he said that developmentally she is way ahead of where he would have expected her to be at this point! We are so proud of our little bobean for proving what she’s made of!  I know she’s a fighter, I can see it!

The karyotype results for the syndrome are still not available and we don’t expect them to be for quite some time but Ali is doing amazingly well at this point and hopefully she proves everyone wrong about the syndrome as well!

She is still totally NG tube fed, we’re not making much progress on the bottle feeding unfortunately but we’re still practicing and hopefully she’ll learn to drink from the bottle soon.

Allison’s weight gain is very good right now, right on track for an infant of her age. He growth lengthwise is not great though but it’s not a major concern at this point , although that is a symptom of the suspected chromosomal abnormality.

Thanks for reading and sending all the positive thoughts!