While in the hospital, Ali is getting a very concentrated formula so once she meets her “time goal” we are going to start increasing the actual amount of formula so that she can still get the required amount of nutrients when using normal formula. We are working towards the goal of eventually bringing Ali home as a tube fed baby. To bring her home though she needs to be able to tolerate the same amount of formula that any other baby would in the same amount of time…I’m thinking about 100ml per half hour every three hours!

Jason and I are going to be trained to take care of the feeding tube for Ali, which is pretty scary.  We have to learn to put it in, take it out, feed her, medicate her etc.  I never would have imagined that I would need that particular set of skills to take my baby home.

Cardiology was in yesterday too and there is some concern that they may have found another issue with her heart but because she has a cold they can’t be sure just yet. They are watching her closely and will decide on a treatment option once her cold is gone.

My mom is leaving tommorow morning. I have really appreciated having her here with me.  I’m going to miss her but Jason will be arriving tomorrow for a few days which will be great!