It’s been too long. Originally Posted March 17, 2011

Since I haven’t posted in a long time, I decided to post a quick update to let everyone know that Ali is doing really well.

Ali can now officially sit unassisted for a few minutes!!! We are so proud (and relieved) that she has achieved that milestone. She still prefers to lay down to play but we’re working on that!

Ali has also learned to stand up while holding onto a low coffee table for about a minute. She can’t pull up but once we position her at the table she is happy to stand until her little legs give out on her.

She is getting pretty mobile, she wiggles and rolls all over the place. Once she hits the hardwood, she really travels.  I have to watch that I don’t step on her because she no longer remains exactly where I put her.

We had a meeting with Ali’s feeding team last week and she is now 17lbs 12oz and is 69.9cm in length. She has officially dropped off the bottom of the growth curve for a child of her age but she is still growing and gaining weight at a decent rate.  We know that she’s going to be very small, they key is just to keep her growing.

We are planning to take Ali to Chicago in July to the International Symposium on Costello Syndrome. We are looking forward to meeting with medical professionals and other Costello families from all over the world. The symposium is being run by the Costello Syndrome Family Network. The CSFN is a charity that is near and dear to our hearts.   We are so thankful for this opportunity.

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