Yesterday we had a consult with Anesthesiology (I have no idea how to spell that). It was pretty uneventful. They have decided to move Ali’s surgery to the morning because she is high risk and they don’t do high risk cases in the afternoon. That worked out well for us. So the surgery is a go for June 28th first thing in the morning.

Today we had an appointment with the Neuroopthamologist. He very quickly came to the conclusion that Ali CAN SEE!! She doesn’t see particularly well but she can track objects to some extent. Her optic nerves are underdeveloped and damaged, they are also lacking proper pigmentation but the jury is out on how that will affect her vision. He also noted that the muscles that cause her eyes to dilate and contract when light intensity changes are hypotonic and so her pupils are always pretty much the same size. This can lead to light sensitivity and she is extremely light sensitive. So for now we don’t know how well she can see but we do know that she can see. She may not end up with good functional vision in the long run but things sure sound a lot more positive now then they did after our first Opthalmology appointment. I am so happy to know that my baby can see me smiling at her. It means the world to me to know that when she smiles back at me she is interacting with me and that she knows that her mommy was smiling and making funny faces at her. I’ve always felt that she could see but her previous test results had me wondering if I was seeing things through rose coloured glasses (I think I do that sometimes).
Tomorrow we are heading downtown to the CNIB for a full assessment and to hear what their recommendations are in regards to Ali’s vision.

Right now I am off to make funny faces at my baby!