Is This Progress? Originally Poster January 27, 2010

Today was an okay day. Ali was pretty gassy today and fairly uncomfortable for a while but that’s to be expected right after she gets a calorie increase. Hopefully tommorow her tummy will settle down and she’ll tolerate her calorie increase a little better. She only spit up twice today which I think is pretty encouraging…all babies spit up after all!

I had a long talk with Ali’s nutritionist today. She is pretty worried about the lack of growth. We need to get that baby to grow so that she’s not really far behind her peers. She is now a little heavier then her birthweight but her length and head circumference are still the unchanged. It’s all a question of calories.

I also had a talk with the pediatrician about going home and working on her growth, feeding tolerance and bottling as an outpatient and with tonnes of telephone support from the feeding team at the hospital. She seems 100% behind us if that’s the route we want to take. It’s a huge commitment and will take a lot of sacrifices but it may be worth it to get home. Ali’s doctor feels that she may do better at home, there is always the risk that we may end up right back here at the hospital though. I really think it’s worth a try. So there’s a chance that we may be released on the weekend. Taking a sick baby home is not really my ideal situation but I am confident that Jason and I can handle this and I really feel that Ali is ready. I don’t believe that she needs to be an inpatient anymore and since I do most of the care anyways during the day I might as well do it at home! I just feel like for Ali’s well being and for the well being of my family, it’s time to make some changes and going home is the best option for us right now.

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