Home Again. Originally Posted July 1, 2010

We arrived home late yesterday afternoon after an uneventful journey from the city. Ali is still doing well. She seems to be in a bit more pain today then previously. We’re wondering if this is because of the car ride home yesterday. The G-tube is not exactly well placed for car seat convenience!

Since having her G-tube inserted Ali is way less mucousy (the mucous that kid had was ridiculous) and she gags a lot less. She still spits up a good mucous ball every now and then but it’s way less dramatic then before and she only turns red instead of purple! We’re really hopeful that as time goes on the mucous will become even less of an issue.

For us, the G-tube is intimidating. If the NG tube fell out we just had to stick it back in, if the G-tube comes we need to get Ali to the hospital for surgery! It is very big and so we have it taped down all over the place and pinned to her clothing in an effort to make sure it’s as secure as possible. Also if the cap opens then we end up with Ali’s tummy contents all over the floor. Note to self, keep cap closed!!! This is a temporary tube and the next step (in 3 months) is going to make our lives so much easier!  We just have to get by until then!

Thanks for reading!

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