Hello G-tube. Originally Posted May 26, 2010

This is going to be a very busy week for Ali.  We started our huge number of appointments this week off today by meeting with the GI specialist and the PEG (Percutaneous Ensodcopic Gastrostomy) team in regards to finally getting Ali a G-tube. After talking to everyone I feel very confident that this is the best choice for Ali. The Gastroenterologist seems very nice and assured me that this is a basic procedure that they do all the time and although there are risks, they are minimal. Ali having Costello Syndrome does complicate things a bit but everyone is aware of the situation so everything should be fine. She is booked for surgery on June 28th. I had to pick between an afternoon surgery on June 28th or waiting another month for a morning surgery. I choose the earlier date because I feel that sooner is better then later but now I’m worried because of how long she’ll have to go without food for an afternoon procedure. I’m really second guessing myself. Truthfully I’m terrified either way. Just another thing to lay awake at night worrying about I guess. Most parents don’t have to worry about sending their infant off to have surgery, no matter how minor so I’m feeling a little bitter again because we had to make another tough decision and because my baby is going to get poked at again and be in pain again. I feel guilty because I can’t fix it, it’s a feeling that I’m getting altogether too used to. I’m sick of tough descisions and I’m frankly a little sick of appointments. I think I’m tired today. Things usually look better after a good cuddle with one of my girls so I’m off to cuddle the heck out of Ali (she’s easier to catch then Madi!!!).

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