We have made the decision to remove Ali’s NG tube and for her to have surgery to have a tube inserted directly into her stomach. We think that in the long run the G tube (Gastric) will be better for all of us. It kind of feels like we failed.  We had every intention of teaching her to eat and a G-tube was not part of the plan in my mind.  But here we are.  She is on a waiting list and we are expecting to wait a couple of months for the surgery.

Ali continues to spit up like crazy. Her wait gain has pretty much stopped in the past month which is concerning but thankfully we had her fattened up pretty good for a while so she has some fat reserves to burn off. She has grown a bit in length which is encouraging  and is probably the most important measure of growth to us currently.

She is still not making much progress with the bottle feeding and we’re wondering if the NG tube has anything to do with that. I guess we’ll see.

Ali giggled yesterday! It was so cute. It wasn’t a full belly laugh by any means but it was pretty clearly giggling and it happened a few times! She was so beautiful laying there smiling and giggling. It did my heart good to see her act like a “typical” healthy little girl. That’s huge for Ali and we are very excited!