Other then the G-tube, I think she’s doing really well. She has a new found love for Peek-a-boo and she’s started to open her mouth sometimes when I try to spoon feed her! She really enjoys tasting some of the commercial baby purees and yogurt. We are pushing really hard right now for her to sit. Her OT thinks that she could sit if she wanted to but she really doesn’t care to try.
Ali is not sleeping well at night. She wakes frequently and cries out in pain, I’m hoping that it’s because of the G-tube and not some more severe issue. Once we get this G-tube sorted out then we’ll have to see if it’s still happening and do some further investigation if needed.
Next week Ali has her regular Cardiology appointments. She’ll be having an Echo, ECG, holter monitor and cardiac check up. Please keep your fingers crossed that her heart defects have remained stable.