Since I’m sure some of you are wondering, I’m going to update on what’s been going on with Ali’s blood glucose issue.  The Endocrinologist has decided that Ali’s blood sugar issues are essentially dietary (“dumping” is common in tube fed kids).  He has ruled out endocrine related issues.  How did he do this?  He made this decisions simply by looking at a journal of her blood sugar levels over 4 days.  Because her blood sugar level drops substantially after having simple carbs, he feels that it’s all dietary.  He thinks she’s dumping. That can be common in kids that are tube fed (which she’s not anymore).  If Ali eats cereal, a piece of fruit and a yogurt for breakfast, her blood sugar drops into a very low range 2 hours later but if we only feed foods with a low glycemic index, her blood sugar remains higher (but still drops).  Hence, in his opinion, Ali’s problem is dietary and the solution is to only feed her low GI foods.  So, I guess that makes it my fault.  He recommended several dietary changes which I am following.  Her blood sugar was better today but still relatively low.  I took away her favourite yogurt and replaced it with plain greek yogurt.  I stopped giving her the cereal that she likes in favour of Oatmeal that she gags on.  I didn’t give her raspberries today because a banana has a lower Glycemic Index.  I have no doubt that I can control the hypoglycemia with food to some extent and I’ve always know that but it’s simply putting a bandaid on the problem.  It doesn’t change the underlying issue.  That’s what no one gets.  It’s not only about the hypoglycemia, it’s about all the other things that an endocrine related issue could cause or be causing.  It’s about helping Ali to feel really good.  For now, I’m just going to follow the diet and only feed her foods with a low glycemic index.  That will to some extent make her feel better and that’s ultimately my goal.  I’m really sad that I haven’t been able to make anyone understand what this is about.   I feel very alone in this and that’s hard.  It’s making me doubt myself and I hate that.