We didn’t expect to get a final diagnosis so soon but the pediatrician just called and the diagnosis is the most severe possibility. Ali has Costello Syndrome. The chance of having that particular syndrome is lower then the chance of winning the lottery. We love her very much and we’ll deal with whatever is to come but right now I’m not sure how we’re going to deal with this. I needed to come here first and post this because I’m not even sure how I’m going to tell people and this way I don’t have to. Sorry for anybody who would have preferred not to find out this way but this is the best I can do today. The pediatrician told me plan for the worst and hope for the best.  Right now, I don’t feel a lot of hope.