Ali’s G-tube. Originally Posted June 29, 2010

Jason did a fabulous job of keeping everyone updated last night while I was at the hospital with Ali. Although we were kind of hoping that we’d be discharged today it appears that I’ll be sleeping in a chair again tonight since Ali hasn’t been discharged. She’s being kept on an observation ward for post surgical patients because there aren’t beds anywhere else and this ward doesn’t have beds for parents, just big “comfy chairs” which are not so comfy overnight!!!

Everything is going well. The feeding is improving and we have been able to control her pain with Tylenol today which is great because she pulled out her IV this morning. If she needed morphine they’d have to put it back in. She’s been smiling and kicking her feet a bit too, it’s so nice to see her feeling more comfortable.

So where do we go from here? We go home with a temporary G-tube in place. It’s rather large as Jason mentioned in his update. We need to be extremely careful with it for the first two weeks and then until it’s been in place for three months we’ll have to take some precautions. The key is not to pull it out or to let her pull it out because apparently in the first three months that would be an emergency. We also have to watch for infections and granulation tissue and make sure that it’s healing in place. In three months Ali will be admitted to the hospital for a second procedure. She’ll be getting anesthetic again and the temporary G-tube will be removed and a more permanent “flat” G-tube that looks like a beach ball plug will be inserted. Then we’re done!

 

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