Today was a discouraging day. We spent the day at home and then returned to the hospital to find that Ali has hit another wall with her feeds. She’s stopped tolerating the feed increases and is pretty uncomfortable. The pediatricians have decided to stop trying to speed up her feeds for now. They are also extremely concerned because although she has gained some weight, she’s still not growing lengthwise or in head circumference. This is an indication that her nutritional status is poor. So now they are going to try to increase the calorie content of her feeds instead of trying to increase the rate of the feed. Once she can tolerate more calories then we go back to increasing the actual rate of the feeds. This is such a long process.

Jason dropped me off tonight and has headed home so it’s just me here now. I’m still holding onto the hope that we are on the home stretch here and that we’ll be home before I know it. But in all honesty I’m afraid that the road got a little longer again today.  I feel really along right now and want nothing more then to go home.