Thanks for stopping by and welcome to my new blog!  Life with Bobean is a blog about life with a very special little girl.  I’ve been blogging about Ali and our family for more then four years and  now, I plan to move the content from my other blog over to this more public blog in order to share Ali’s journey with more people.  This blog will hopefully provide some insight into what it’s like as a family to live with a rare syndrome and also raise awareness for my daugher and all the other amazing people living with Costello Syndrome.  This will be a amazing journey for me as I sort through blog posts from right after Ali was born until very recently and repost them here to share her amazing journey!  Please enjoy reading about our amazing little Bobean!!!!